MS and the White House connection

   

     I’m a hard-core cynic.  We’ve heard too many empty promises from politicians, TV and movie stars, and MS organizations. 

     Empty promises like when they (organizations, stars, and politicians) say they will help us pay for mobility devices and ramps to make our home more accessible, because so far, those have been completely out of pocket expenditures for us.  When they say that there are support groups for Dear Hubby, because any we’ve found seem to be for newly diagnosed patients, and those with relapsing remitting MS.  He refuses to sit through another ‘I-was-just-diagnosed-and-need-a-shoulder-to-cry-on’ session.  It’s not from lack of sympathy on his part; it’s from overload on the subject.  We’ve never found one that addresses the long term and secondary progressive MS issues.

     When they say there are medications out there, we agree that there are, but again, they are mainly for people with relapsing remitting MS.  Sometimes DH feels as though he’s on another planet when it comes to SPMS. 

     Will the Obamas’ personal connection to MS make a difference?  I hope so.  What will a White House connection bring to the table?  So far, we’ve a promise of a reversal on stem cell research.  This does hold promise for DH and others who have MS, especially those who have SPMS and PPMS.

 

Unknown's avatar

About doggonedmysteries

Agented Mystery Writer, Bull Terrier owner--I have one at the present time, Avid gardener.

Posted on March 7, 2009, in MS related, My blog and tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , . Bookmark the permalink. Leave a comment.

Leave a comment