12 things I’ve learned over the many years since his MS DX

  1. The first thing I learned is there is no cure for Multiple Sclerosis, but everyone thinks he will get better.
  2. Secondary progressive MS means a downward spiral to the worst possible scenario you can think of happening.
  3. There is no cure for MS.
  4. No one really cares. They are just glad it’s not them.
  5. When asked point-blank for help, MS organizations do a few token things to make them feel better. They don’t really help in ways that are needed. There is no such thing as help.
  6. So-called friends stop visiting. Leaving the MS patient very lonely and therefore more apt to drive the caregiver crazy.
  7. It’s impossible to do dishes and listen to him ramble on about something on the TV I didn’t see or hear because I was doing dishes and can’t see or hear the TV much less his mumbles over running water. No one else is going to do the dishes.
  8. Caregivers never get a break from the daily insanity.
  9. I’m always terrified. You can learn to live with fear.
  10. I cry and cuss much more than I ever used to.
  11. I miss hugs. He used to hug me every day.
  12. You can’t lose weight when you are always stressed.

     There are more things but I figured 12 was enough. You all have a good one.

HPIM2987

 

 

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About doggonedmysteries

Agented Mystery Writer, Bull Terrier owner--I have one at the present time, Avid gardener.

Posted on April 1, 2014, in MS related and tagged , , , , , , , , . Bookmark the permalink. 2 Comments.

  1. I am so sorry for everything you’re dealing with. I wish you were in Canada where the opposite is true.The only words of encouragement I have is that we are here to listen.

  2. So sad. I am newly diagnosed. Praying for us all.

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