Category Archives: MS related
Too bad we didn’t get things done before his MS got so bad.
I feel bad for The Curmudgeon on the days where I wish a project could be done around here, when he says he can do it, and I know he can’t. I know I shouldn’t but I tell him all the ways he can’t do it.
Afterwards I know I should kick myself for doing it, but I KNOW how much he can and cannot do.
There is no way he can put up drywall in the kitchen, new lighting, and (fake) tin ceiling. I’d kill to get it done. I have a lovely floor in there and the rest of the kitchen, other than the cabinets, looks a wreck.
The master bedroom still needs drywall on walls and ceiling too. Never going to get done, I need to resign myself to that fact.
It is depressing to say the least…However, I will do what I can do and to heck with what I can’t.
You all have a good one.
I wish my kitchen looked like this, mine has paneling and it sucks. If I could get the kitchen and bedroom this far, I can paint!!!
Another day of MS fogginess for The Curmudgeon
The Curmudgeon was all befuddled yesterday because his routine suffered interruption by some religious idiots knocking on our door. It threw him so far off, that he forgot to take his morning medications, thank you very much you useless fools who knock on doors trying to force your religious views on others. Be glad I was asleep.
Once I woke up, I managed to get things back in order. I’m so glad I’ve taken to checking his pill containers twice a day to see if he took his morning and evening pills.
Yes, his MS is affecting his brain function. If he doesn’t do things in a certain order each day, he forgets stuff and gets all muddled.
You all have a good one.
One step back…
So the appointment at the neurologist didn’t go as hoped. On the bright side, the MRI of his spine didn’t show any new lesions. On the dark side, his EEG has them worried.
Now they want an MRI of his brain with contrast. He has to have blood work done beforehand because the hospital won’t do the MRI without the blood work.
His nurse practitioner (with whom he had the appointment) and his neurologist were both in the room at the end of the appointment. Not something that happens often and something I find a tad disconcerting.
There big concern was his one medication, Ampyra. It can cause seizures. What they found on his EEGs had them concerned.
He is showing more muscle weakness as of late. His balance is poor and he needs to use the walker and rollator more.
I can see the day coming where I will need to get help in for him, and I have no idea how we will manage to pay for that.
What scares me the most, is that the time to do this, is coming closer at a faster rate.
Well, we’ll deal with it when it gets here. For now, as usual, it’s one day at a time.
You all have a good one.
EEG is over now we wait…and wait…and wait
I always wish test results were instant. I hate waiting for them. We probably won’t know anything for at least a week.
The Curmudgeon could not get home fast enough after they removed all the wires and glue-like crap. He’d not showered for three days–this is a man who showers at least once a day. It took three scrubbings for him to get most of the stuff out of his hair.
He has three patches on his face where the ‘glue’ took off skin. He’s not thrilled. I’m disappointed that he wouldn’t let me get a picture of him in his scarf and fancy gauze covered wire braid. He has no sense of humor sometimes.
You all have a good one.
You don’z hab a scarf on, we knowz you now!
Update on what’s going on with The Curmudgeon this week.
The Curmudgeon is having an ambulatory EEG done. This will take three days. Yesterday began in the very early morning with them attaching wires to his head that run down a sleeve into a machine strapped on his waist. A microphone is hooked to his shirt.
He must wear the microphone all the time and use it for a long list of events, such as eating, brushing his teeth, going to sleep, waking up, taking meds, etc.
He has a list of do and do not things too. Day one is over, he’s gone to bed, and can’t wait for day three to be here and gone. He is not a happy camper. He’s complained about the wires, the kerchief on his head, and everything having to do with this.
You all have a good one.
Doggonedmysteries 