Blog Archives

Occasional double vision, clumsiness, tingling in hands and feet finally added up…

     Eighteen years ago, my husband learned that he had MS.  The doctor sent him to a neurologist.  That neurologist never provided him any medications or counseling.  He refused to deal with our health insurance company and charged $250.00 per visit. 

 

     What would Dr. Donothing do for that sort of money, you ask.  He’d give him a less than five-minute exam that’s what, and then he’d send Dear Hubby on his not-so- merry way.  After less than a year, DH quit going to him.

 

     Years later, I had trouble with my hands going numb.  Our family doctor sent me to a neurologist for testing.  DH came along.  During my tests, I told this new neurologist that DH had MS.  He asked DH what neurologist he was seeing.  I answered, “He isn’t.  I can’t get him to go to one.”  The neurologist, while running my tests, began to ask DH a ton of questions and he answered many we had.  His evident disgust at the lack of treatment DH had received at the hands of Dr. Donothing gave me hope that we’d found some help at last.  We had!

 

     This neurologist arranged for DH to go for an MRI and set up an appointment with his partner, who specialized in MS, before we left the office.  He’s been going there for 10 years now.  Four years ago, his relapsing remitting MS diagnosis changed to Secondary progressive.

 

     He’s on Avonex, had chemo treatments, and yearly MRIs to track the progression of his MS.  Then there are his weekly physical therapy and monthly pain management appointments.

 

     We’d like to hear from other MS patients who are Secondary Progressive, and who have lived with this disease for approximately the same length of time or longer.  Secondary Progressive MS is a subject we’ve rarely found discussed on any web site or in support groups.

Malcolm’s Mayhem 3

     One breed of dog that teaches a person humility in obedience classes is a Bull Terrier.  If you brag about their progress, they will immediately take the starch out of your sails.

     When the canvas bag came out, the water bottle was filled, and the leash rattled, Malcolm knew it was time to go to school.  He did helicopters, bully runs, and generally made a fool out of himself.  His idea of school was a place where there were many dogs and people to play with and to pay attention to him.  It’s also, where he held the uncontested title of class clown. 

     The first ten minutes of class, he was a lunatic, but then he settled down to work.  The settling began during our heeling session that our instructor put us through for fifteen minutes.  Therefore, after ten minutes of him leaping and cavorting about we had five minutes where he was working well. 

     Malcolm loved doing recalls.  He got to sit in line with all his pals and see if he could get any of them into trouble.  Then came the part where he would run full tilt into Mom, I braced for impact.  Enthusiasm is great but I wished he would learn to stop before he hit my legs.  My instructor said it would come in time and it was better not to put a damper on his enthusiasm.  She was right.  He used my legs less often later. 

     Figure eights were jolly fun.  Sits and downs existed for humor.  He loved to see how many of his pals he could entice into breaking position.  A little eye contact here, a madly wagging tail there, he did manage to get his fun in.  

     The down was the best time to see how patient Mom could be.  Early on in obedience classes, Malcolm discovered he could make all the people laugh.  When I would walk away from him while he was on a down, his tail would start to wag like mad, and he’d crawl on his belly behind me.  Crawling was fun.  It drove Mom crazy.  Everyone laughed.  His face had that grin that said, ‘see, I stayed down.’  It took a while, but he finally learned (after having to use two leashes and an assistant) that down/stay meant lie down and stay put, NO crawling. 

     Once he learned the down, the next most difficult thing for him to learn was the stand for examination.  That person who approached him in such a friendly manner, offering a hand for him to sniff, it must mean-yes, time to play or have belly-tickles.  How exciting to have someone approach him.  His tail would wag, his body would wiggle, and he’d move, try to climb on them, or flop onto his back.  Hello, what part about the word stay have you forgotten? 

     The most important thing was that he had the time of his life and so did I.  Oh, he finally learned to stand for examination and sure looked good in the show ring.

You don’t pour the wine until after the pumpkins are carved?

     Every year, on the night before our town’s ‘designated’ Trick or Treat night, my best friend and I get together to carve pumpkins.  We don’t do simple carvings nor do we do a mere one or two.  We do elaborate detailed carvings on six to eight of them.  

     After twenty-five years, we’ve perfected our method.  We do our most difficult carvings on the first ones.  Hey, we’re feeling fresh so they go fast.  With the first two finished, we take a break, open a bottle of wine, pour a glass, put candles in our finished pumpkins, light them, and turn out the kitchen lights so we can see what the pumpkins look like.  We ooh and ah, blow the candles out, turn the lights back on, place the finished pumpkins on my back porch and sip our wine. 

     Our second two pumpkin patterns are not as difficult as the first ones, they are intermediate they aren’t that tough to do.  Happy we finish them in a little more time than the first ones took to do.  We sip our wine, candles, light them, lights off, ooh, ah, lights on, candles out, pumpkins on porch, we quaff our wine. 

     By the third one each, our hands are getting numb and sore.  The patterns are easy ones and they take us longer to carve.  We put in candles and light them, lights off, ooh, ah, lights on, candles out, pumpkins on porch, we swig our wine, and hope the cramps in our hands subside. 

     At this point, my friend asks, “Do we really need eight pumpkins this year?  Whose idea was it to buy four pumpkins each?”

     “You’re said to buy four each.”

     “How numb are your hands?” 

     “Not nearly numb enough.”

     “Remind me, why do we do this every year?”

     “Because we love seeing the reactions.  Because after 25 years of doing this, the kids and their parents expect them.”

     We stare at the last two pumpkins.  We chug our wine.  We carve….

“Happiness is wanting what you have.”

     A friend wrote to me that she’d quoted that to someone yesterday.  It is so very true.  I’m glad to say I want what I have, in fact, I’m happy with it.  

     Unfortunately, I see many unhappy people who aren’t happy because they don’t appreciate what they have.  These are the people who always want more money, bigger homes, boobs, better cars, jobs, husbands, wives, partners, you name it they want it.  They’re never happy unless they max out their credit cards to get things.  If they can’t do it that way then they take, lie, cheat, and steal to get what they want.   

     Once they have those things, they find that it doesn’t fill the hole they feel inside and they wind up still wanting more.  Why?  They don’t want what they have.  They want what someone else has.   

          Happiness is wanting what you have.” 

     Are you happy?

I work with beads when I’m not writing.

     A while back, I began to make my own necklaces because I fell in love with those lovely chunky ones I kept seeing but couldn’t afford to buy.  Whenever I saw an interesting necklace on TV, (Bones wears some great ones by the way) I would think of how I could make something similar.  

     It got so that people I knew were asking me where I bought mine.  When I told them that I made my own, they began to ask if I d sell some.  I hadn’t thought of that, but soon I was making and selling a few necklaces.  I didn’t make any money at it but I did enjoy having something to do with my hands when I wasn’t writing. 

     Dear Hubby has no manual dexterity left due to his MS.  However, he did help me invent a combination ID tag holder/necklace.  At my last writers conference I ran out of them the first day.  Now if only my books sell as well…. 

     Recently an extraordinary friend sent me two hefty boxes full of beads of all types and sizes along with some tools I didn’t have.  What a marvelous treasure they are.  I know she reads this, so here’s another thank you, Elena.  An additional thank you goes to another wonderful friend.  She owns the shop on my blogroll, and she has permitted me to put some of my necklaces and earrings in her store.

Do I ever schedule anything? You have to be kidding.

     Dear Hubby has secondary progressive MS so we have regularly scheduled appointments with his neurologist, pain management, physical therapy, and our family doctor.  Then we have his elderly mother’s many appointments we have to schedule around his.  This coming week we have three appointments. 

      His mother has one on Thursday because her doctor changed it.  We normally have a rule about appointments; they are never scheduled on a Thursday if we can help it.  Thursdays are when I have my twice a month critiquing group meeting.  On the alternate Thursdays, I go grocery shopping and to the farmer’s market.  Other times I shop at the pet store for the dogs and Koi, and I drop in to visit a few friends if I have time.  In other words, it’s my day.

      I didn’t go to my critiquing group this week even though it was scheduled.  I didn’t mind not going I had a good reason to stay home.  DH took a nasty tumble into the arm of the couch a few days before and managed to break a rib.  (His MS causes him to fall a lot since he has very little feeling in his feet and a lack of muscle memory.  Usually he manages to fall without even a little bruise because he’s learned to fall.)  He was not thrilled to have me stay home and hover, he wants me to have some ‘me’ time.  He knows I need it, but I know that there are periods where he needs me more. 

      Until early this summer, we hadn’t realized how much he depends on me.  Then I fell and sprained, not one ankle, but both of them.  Yes, BOTH of them and our two Bull Terriers were not involved in the incident.  (Anyone who owns Bull Terriers would think they were but that’s another post.)  The dogs are innocent of this mishap.  However, I do think I need to speak to a contractor about fixing the uneven sidewalk in the back yard.

      I was supposed to stay off my feet, oh yeah that works.  Crutches are fine if you have only one ankle sprained, they don’t work for two ankles.  You have to come down on one or both feet with each swing.  Hobbling around with a cane worked best for me and gave DH many a laugh.

      DH is a jewel among men.  He did his best but he hasn’t the strength or energy to take care of the dogs, the gardens, the pond, or cook meals.  We ate a lot of take-out/delivered food for a few weeks.  If I ever see another bucket O’ chicken, I may sprout wings and cluck, and it was a few months until I wanted pizza or Chinese food again.  The dogs took advantage because they knew I couldn’t chase them down.  The weeds got ahead of me and the pond filters needed a cleaning, but I didn’t care because he tried his best and that’s all anyone could ask of the love of their life.

What do you mean the power is out? I haven’t had my coffee yet.

     I hate it when coffee sits on a warmer all day.  It tastes burned after the first fifteen minutes.  I have my coffee maker set to turn off immediately after the pot fills.  I heat each cup in the microwave and I never get that all-day-on-the-burner flavor.  They do have coffee pots that have thermal carafes, but then the coffee tastes like eau de old thermos coffee after the first hour.  Yes, I’m prickly about my coffee. 

     I don’t spend a fortune going to places like Starbucks ordering lattes or cappuccinos.  When I ask for coffee, I want coffee.  No, I don’t want raspberry, caramel, macadamia nut, chocolate flavored syrup in it.  Can you say coffee?  I don’t mean that brown dishwater that some people try to pass off as coffee.  I mean a rich, full bodied, robust cup of coffee.  A one swallow and your eyes pop open coffee.  I want heart pounding, pulse racing, and brain stirring hot coffee. 

     In view of that, a few days ago, when I awoke and found our power was out my first thought was of coffee.  Oh, my God!  Did I make a pot before bed?  Hell, I’ll drink it cold or go heat it on the grill if there is coffee.  Oh, please let there be coffee I can’t wait for a pot to brew on the gas grill.  I need it now. 

     I trudged downstairs dreading a lack of coffee and a day of crankiness on my part.  Entering the kitchen and spotting a full pot of coffee brought a grin, touching the pot and finding it cold lost the grin.  My first defensive line during a power outage in our neighborhood is to go to my best friend’s house she lives a half a block away and she’s on a different power line. 

     I filled my cup and DH never uttered a word as I walked out the front door, he knew where I was heading.  I figured if she had power I’d have a quick heat up on my cup, if she didn’t, then I’d go back home and light up the grill. 

     I knocked on her door, noticed her TV was working, and when I saw her through the screen I held up my cup, gave her my most pitiful look and said, “Must-have-coffee-heated….”  Joy of joys, she snatched my cup from hands and popped it into her microwave.  One minute later, I had my hot coffee and everyone around me could breathe again.

Malcolm’s Mayhem 2

Visit our home and you’ll see numerous beware of dog signs about.  They are surplus from when we owned a German shepherd, though I feel that they still apply in Malcolm’s case.  He’s not the type of dog to be aggressive with people.  That is, not to those that we welcome and who enter by the front door.  They are the ones he’d probably lick to death or lead to the icebox.

However, in the last few months we’ve noticed that he has become a hazard for anyone who drops in on us.  The dog has developed a fascination for shoelaces.

After our guest or guests enter our home and sit down, Malcolm crouches at his chosen victim’s feet.  When he figures that no one is paying attention, he noses over closer.  Then, ever so proficiently, he takes a hold of his target’s shoelace, and little by little, tugs until it is untied.  They never feel it unless he wants them to.  Once he’s untied the shoelaces on both shoes, he waits (rather pleased with himself) for them to notice his scheme.  I’m waiting for the day that he learns to tie them together and really trips someone up.  Believe me; I think if he had thumbs, he would’ve succeeded at that endeavor a long time ago.

If a dog could laugh, Malcolm does.  He has a weird sense of humor.  Most of his jokes are on me.  There’s a certain sense of relief to see that he’s found another outlet for his wit.  And, a lack of sympathy for the new targets of his hilarity.

For my safety, I’ve taken to wearing sneakers that close with Velcro.  Unfortunately, he’s discovering how much fun Velcro is, and what a neat sound it makes when you tug on it.  But, at least, unlike shoelaces that dangle and delight his hilarity, Velcro isn’t something he can open without you knowing it.

Bribery will get him anywhere.

 

     Our Bull Terrier, Gavin has the weirdest nails.  They are white and look as if they’d be easy to trim, but they grow too thick to snip with clippers and he went crazy if we tried to use the Dremel tool on them to grind them down as we had successfully done with our previous Bull Terriers.

 

     Dear Hubby decided to buy the Peticure© he’d seen on TV.  Well, when it arrived it was almost identical to our cordless Dremel tool including the same noise and vibrations.  The only difference was the Peticure had a plastic safety cover over the sanding disk.  Gavin was not amused. 

 

     However, DH was determined and after many doggie treats with no grinding and just the noise and vibration of the tool, he made his first attempt to grind away.  I walked across the room to retrieve the Peticure while he coaxed Gavin back onto his lap.  

 

     A dozen treats and several more tool and dog retrievals later, DH successfully completed trimming one nail.  It’s been a long road the last two months but now Gavin has short nails.

 

     Today Gavin will allow DH to trim his nails whenever he wants to…if DH has a pocket full of treats.

How to paint the interior of a house by yourself while two dogs run amok

 

     The first thing you do is load your husband’s pockets up with dog treats so he can keep the lovable A.D.D. beasts busy while you work.  The second thing is you cover everything but the TV and the husband’s chair with drop cloths. 

 

     You then decide what section of wall you wish to start working on, and you don’t do any painting at dog level until they are safely in bed for the night.  Of course, this means that all the work you are doing while they are awake is done on a ladder—not exactly the smartest place to be. 

 

      All paint should be kept above dog level so that when it is spilled it can splash more, go higher, and spatter you, the dogs, and the husband, not to mention leaving all sorts of pretty patterns on the two pieces of furniture you didn’t cover with drop cloths. 

 

     In case you think that I have a brute of a husband, or a lazy one, let me explain—he is disabled, and can’t help do the work.  Therefore, the job of dog sitter keeps both him and the dogs busy.  Well, that is until the treats run out and they decide to check out what I’m doing on a ladder—see above.