Blog Archives
Will the old dog ever sleep in?
Seems that no matter how late/early I take the Gavin out, he still wakes me an hour or so before my alarm. So your guess is as good as mine.
I’m actually glad that the old boy is still around to wake me up so don’t get me wrong. It’s just that, every day, I want that hour back.
This isn’t the Wonderland I’d like to be in
It’s difficult to watch this man fall apart more each day.
We’ve been married for 43 years and together for two years before that.
We had our ups and downs but this has been a very long down since his diagnosis in 1989. It’s difficult when you no longer have any ups.
The fall down this rabbit hole is far from pleasant and when you hit the bottom, you realize that yes, things can get worse.
There is no bouncing back. This is not relapsing remitting MS. This is that long, slow fall down the rabbit hole into a Wonderland that has gone bad.
Back on the Ampyra after only two days…
The Curmudgeon had such a bad day that I almost canceled my hair appointment but he bade me go ahead.
He put in a call to his neurologist about his Ampyra. He could barely walk and that frightens him. He’d rather have poorly functioning kidneys than not be able to walk.
They called back early in the evening and told him he could go back on Ampyra.
One dose into his system and he’s feeling better.
Welcome to my hell
So now his kidneys aren’t functioning right.
They had him stop taking his Ampyra which is the pill that makes it so he can walk. They also had him stop taking his Celebrex that stops the severe pain in his back from arthritis in there.
Until the Nephrologist sees him IN JANUARY.
Imagine his hell–all that pain and not being able to walk again. For at least 2 1/2 months! Maybe longer if they take him off the medications permanently.
And then there’s my hell…I don’t have any help so when he can’t walk, I have to move him and I am not a young person without health problems.
When he’s moaning and groaning in pain, I can’t help him.
I can’t leave him alone and yet I still have grocery shopping to do and all the rest of the upkeep of the house. Can you say beyond overwhelmed?
It’s no wonder to me why there is such a high divorce rate in patients with MS.
Not real thrilled with people
If you haven’t noticed…I have not been on my Facebook page a lot.
I intend to continue this practice.
I have enough on my plate, I do not have to deal with people and situations that I don’t like.
There are many of you out there that I absolutely adore.
During this past year I remembered that I don’t like a lot of people for various reasons.
At my age, I know what and who I like rather quickly.
LOL! Me? Spammed by a designer handbag outlet.
Anyone who knows me knows that just the idea of me carrying a designer handbag is ridiculous.
I buy a leather purse when my last one wears out.
Yes, I said wears out.
I do not change purses with the season.
I do not buy several colors.
I buy one I like and I stick with it until it falls apart.
A designer’s name on a purse doesn’t make it last longer or look better. It only makes it cost more and I find it rather silly to spend a fortune on a purse.
My reasonably priced leather purse…I have carried it since 2013, will carry it until it falls apart, and I have another one just like it on order. Why? Because I like it and it wears like iron. LOL
A minute to myself
That’s all I ask.
Even better would be a space of my own.
A little space all my own where no one can come in uninvited.
A desk, a comfy chair, bookcases, a good reading lamp, and a strong lock on the door.
An escape pod if you will.
Shot reaction
Seems MS rears its ugly head at the worst times for any reason under the sun.
This time as a bad reaction to The Curmudgeon’s pneumonia shot.
One shot resulted in two days of not being able to get out of his bed and four days of profound weakness.
This insidious disease takes more of him as each day passes.
The Curmudgeon’s Tee shirt today
Doggonedmysteries 