Blog Archives
Too long of a day
Posted by doggonedmysteries
The dogs had me up early in the morning.
Then I had a morning appointment with my cardiologist–he never has afternoon hours in Allentown. Therefore, I didn’t get a call in to the plumber until after I got home.
I didn’t dare call earlier because I figured they’d show up when I had to leave for the doctor’s office. As it was, the plumber was here two hours after I called. Three hours and $276.00 later, my plumbing problem had gone away.
Phew! I thought, with our luck, I’d have a plumbing bill in the thousands.
Going to try for a run out to the hospital to see The Curmudgeon today, barring any unforeseen circumstances.
Posted in Misc
Tags: Author, Caregiver, Disability, Doggoned, Home, Life, Love, Multiple Sclerosis, Writer
AAAAAND the other shoe drops…
Posted by doggonedmysteries
Here I thought I might actually get a few things done yesterday, like the wash. I’d told The Curmudgeon I wouldn’t be in to see him because I had a dentist appointment that I’d postponed when he was in the hospital for his pneumonia. He seemed fine with that…the nurses not so much.
Excuse me? I cannot cancel and reschedule that appointment again. And I won’t be there today too because I have my cardiologist appointment–reschedule that one? Yeah sure. If I want to wait six months. I don’t think so.
I thought I might get some overdue chores done yesterday too. Went to put some laundry in the washer and found some smelly water in it. So, I ran it with washer cleaner…OMG!!!
Water in the basement and the drain from the washer shooting water several feet into the air…yep, we have a plumbing problem to top everything off.
I called one plumber and he didn’t get back to me until after 5 p.m. He can’t do the job–doesn’t have a large enough snake and no camera to send down the drain…
Too late to catch another plumber without paying through the nose…will call early in the morning…will also have to have G house sit for me while I go to my appointment.
I seriously feel the desire to pack up my vehicle and disappear with the dogs. I hate this house, I’ve hated this damned house for 43 years.
Posted in Misc
Tags: Author, Caregiver, Disability, Doggoned, Home, Life, Love, Multiple Sclerosis, Writer
I wish the phone would stop ringing every five minutes
Posted by doggonedmysteries
With The Curmudgeon in the hospital I am having a mini-nervous breakdown from the constant phone calls. And the stupid hacker phoned again, did he ever get an earful!
Need I remind any of my dear readers that I am NOT a morning person?
I am dead set against politicians phoning anyone in the days before an election. I swear we’ve had a call every five minutes since eight in the morning when they woke my ass up. That person got a loud ear full of all the swears.
I am not a nice person when I don’t get enough sleep and y’all have only yourselves to blame if I cuss at you.
Honey, if they (the people) haven’t made up their fucking minds by now they never will. So leave me the fuck alone and let me catch my breath.
So yeah, I am not a nice person to those who make political calls or call to harass us. I vote in all the elections. I was judge of elections for quite a while. I do not need the new kiddies on the block reminding me of what I already know and have done since I was 18. A long time ago.
I jump and my heart pounds at the phone ringing because The Curmudgeon is in the hospital and they have yet to figure out WTF is going on with him. They “THINK” he “MIGHT” be having night-time seizures but they aren’t positive.
I think I MIGHT want to slap them upside the head with a baseball bat but I’m not positive I will.
What do I want? I want a silent phone, some straight answers, the hacker’s dick to fall off, and a bit of what I can find of my sanity.
Not feeling very social
Posted by doggonedmysteries
So tired, so stressed out, so lost. I am not feeling very social. G knows me well enough to not allow me to fold into myself.
The drive over to the hospital where they have The Curmudgeon now sucks big time. I’m so stressed that I have to impose on G to go along and be my navigator because I can’t remember from one minute to the next, how the fuck to get there.
He is very pissed at me for letting them take him there. But they don’t have the EEG monitoring available at the Allentown hospital. So far I am not unhappy with the nurses I’ve met on the 7th floor. Give it time, if they screw around with me or him, I will go ballistic. At least he’s not back on the 8th floor where he was not treated well.
I have many appointments over the next couple of weeks for me in various places at various times. I am NOT going to be able to drive over there every day.
Thank goodness for his speech therapist, I called her to tell him he is in the hospital because she has an appointment with him here Tuesday. She’s calling all the other home care people to let them know so I don’t have to. I really like this gal.
I hate that the phone won’t stop ringing–all the fucking political calls. Every time it rings I go through the roof.
Posted in MS related
Tags: Author, Caregiver, Disability, Doggoned, Home, Life, Love, Multiple Sclerosis, Writer
Had to call for an ambulance again
Posted by doggonedmysteries
Couldn’t understand why The Curmudgeon wasn’t downstairs when I noticed that the clock said twelve noon. I went to check on him and he did not wake completely or easily. He spoke gibberish and was acting strange.
The only coherent thing he said was “NO” when I told him I called for an ambulance. Tough shit dear, you are scaring the crap out of me, of course I’m calling them. You need professional care and I am not a professional.
He’s been transferred to St. Luke’s in Bethlehem so they can monitor him with EEG set up.
I am exhausted. Scared to death too because they asked me about intubating him and I had to follow his wishes and say no intubation and that he is a DNR.
Posted in MS related
Tags: Author, Caregiver, Disability, Doggoned, Home, Life, Love, Multiple Sclerosis, Writer
Trick or treat 2015
Posted by doggonedmysteries
No fog machine this year. I thought we had fog juice but for the life if me I couldn’t find it.
Thanks to Annie’s husband we had music! They came over and he fixed all the wiring.
I realized almost too late that I had a horrible lack of batteries. G and I made an emergency run to Walgreens. Not good to arrive at a Halloween clearance sale with my enabler. I came home with yet another prop–but I did get it at half price.
We finished decorating the porch and putting batteries in props just in time for the arrival of the first group of kids.
Great time! We had hordes of kids and lots of fun.
The after party was a quiet one with one of the best lasagnas I’ve ever made and G’s most wonderful pumpkin cheesecake.
Posted in Holidays
Tags: Author, Caregiver, Disability, Doggoned, Halloween, Life, Love, Multiple Sclerosis, Writer
You have got to be kidding me!
Posted by doggonedmysteries
Another pharmacy run–wtf am I living there now? I’m beginning to think so either that or maybe they should pay me I’ve been there so much last week and this week.
So then the new Keurig coffee brewing system arrives and I celebrated. I brewed a lovely cup of coffee, did a happy dance, and was ready to live with the joy that was my new way of brewing coffee that was easier for The Curmudgeon.
Went to brew a second cup and it wouldn’t make me my coffee. Wasted several K-cups trying for another cup of what was pure ambrosia to no avail. Pissed off? Me? OH YEAH.
The expensive coffee brewing system I bought–commercial grade even–because I thought it would hold up to heavy use, is a piece of worthless metal and plastic. No coffee. No thank you.
I want coffee. I don’t have the time or the patience to deal with this shit. I called Keurig only to be told that they were fielding too many calls to talk to me and they would call me back.
Still waiting Keurig, call me. Seriously Keurig, I NEED MY COFFEE!!!!
I feel like the homely girl after a first fuck waiting for him to call the next day.
Posted in #*%$!! Electronics!
Tags: Author, Caregiver, Disability, Doggoned, Home, Keurig, Keurig Vue, Multiple Sclerosis, Writer
What’s my line?
Posted by doggonedmysteries
Holy crap what a day.
G and I went to the drug store, the grocery store, Target, and then home again just made it home a couple of minutes after the physical therapy guy left.
Half and hour after I got home the visiting nurse showed up. She checked The Curmudgeon over again and his lungs still sound clear.
Just as she is leaving, the speech therapist arrived.
I’ll never keep all these people straight. Especially when they phone here asking for The Curmudgeon and sound like a sales call.
And you are? What’s your line?
Posted in Misc
Tags: Author, Caregiver, Disability, Doggoned, Home, Life, Love, Multiple Sclerosis, Writer
Run, run as fast as you can…
Posted by doggonedmysteries
There are days I feel like I’m on a treadmill and can’t get off.
Took The Curmudgeon to a doctor appointment yesterday. It took such a huge chunk out of the day, nothing else got done. We did take Lucy along and she was very good in the car.
Today we have two appointments, PT and ST–thank goodness they are coming here. I really don’t feel like going anywhere…oh, yeah I have to go to the pharmacy to pick up his prescriptions from yesterday. There goes another day shot to hell.
Yes, she is spoiled.
Posted by doggonedmysteries
Decided to try to sleep in my bed last night. I took Lucy up with me only because I knew she’d be yodeling in her crate if I left her downstairs. And over the last couple of weeks I liked having her next to me.
She was so good, she may do this permanently.
I got to sleep in comfort and I got to sleep in. She didn’t insist on getting up early.
Posted in Dog related
Tags: Author, Bull Terriers, Caregiver, Disability, Doggoned, Life, Love, Multiple Sclerosis, Writer
Balance…what is that?
Posted by doggonedmysteries
I keep hoping to find some sort of balance, but then the real question is: what is balance?
G and I went to the Parkway in the afternoon. We took Lucy along. Lucy couldn’t believe it! She had a blast sniffing all the smells and staring at the two giant dogs (horses) she saw that were grazing by the path.
She didn’t bark at them. She just stared in awe.
This evening I stood back and watched The Curmudgeon struggle to get his pills together for the next couple of weeks. I do my best to stay back and leave it up to him. He does need to do some things for himself and I cannot do everything all the time and keep my sanity.
When he almost finished, I offered to do the rest. Not for him but for my sanity. I couldn’t stand another hour of his moaning and groaning.
Is this balance?
Posted in Misc
Tags: Author, Caregiver, Disability, Doggoned, Home, Life, Love, Multiple Sclerosis, Writer
Visiting nurse day
Posted by doggonedmysteries
We met The Curmudgeon’s visiting nurse today. She’s nice enough, but so damned young.
Once again, all the years of research I’ve done on MS and secondary progressive MS proved to be ever so much more than what most doctors and nurses know about what is going on. Spent quite a while getting her up to speed on his drugs and the whys and what-firs on his use of them. I’m sure this won’t be the last time I have to do this for her.
Two more visiting entities means more teaching on my part. Hopefully by the end the next patient benefits from what they learn here with The Curmudgeon.
Posted in MS related
Tags: Author, Caregiver, Disability, Doggoned, Home, Life, Love, Multiple Sclerosis, Writer















