Blog Archives
Yes, she is spoiled.
Decided to try to sleep in my bed last night. I took Lucy up with me only because I knew she’d be yodeling in her crate if I left her downstairs. And over the last couple of weeks I liked having her next to me.
She was so good, she may do this permanently.
I got to sleep in comfort and I got to sleep in. She didn’t insist on getting up early.
Iz we weddy to goez up to bedz yet?
Balance…what is that?
I keep hoping to find some sort of balance, but then the real question is: what is balance?
G and I went to the Parkway in the afternoon. We took Lucy along. Lucy couldn’t believe it! She had a blast sniffing all the smells and staring at the two giant dogs (horses) she saw that were grazing by the path.
She didn’t bark at them. She just stared in awe.
This evening I stood back and watched The Curmudgeon struggle to get his pills together for the next couple of weeks. I do my best to stay back and leave it up to him. He does need to do some things for himself and I cannot do everything all the time and keep my sanity.
When he almost finished, I offered to do the rest. Not for him but for my sanity. I couldn’t stand another hour of his moaning and groaning.
Is this balance?
Someone zonked out
Visiting nurse day
We met The Curmudgeon’s visiting nurse today. She’s nice enough, but so damned young.
Once again, all the years of research I’ve done on MS and secondary progressive MS proved to be ever so much more than what most doctors and nurses know about what is going on. Spent quite a while getting her up to speed on his drugs and the whys and what-firs on his use of them. I’m sure this won’t be the last time I have to do this for her.
Two more visiting entities means more teaching on my part. Hopefully by the end the next patient benefits from what they learn here with The Curmudgeon.
Mostly calm day
Took a much-needed trip to the farmers market with G yesterday. Came home with such treasures as bear claws, string beans, Jonathan apples, yogurt from a local diary, a pork chop for me, and pimento cheese.
Cooked a lovely shepherd’s pie and baked apples for dinner. Found out that Lucy loves tart apples.
Gimmee dat apple!
Waiting for therapy and cursing hackers
We are now in the process of waiting for people to call us to schedule his physical therapy, speech therapy for his swallowing problems, and the visiting nurses.
Since the computer disaster I have not been able to check on all the appointments I had in there. So far, it has fucked up my dentist and cardiologist appointments.
I haven’t had time to run my computer over to the repair people.
Therefore, I once again have cursed the (I hope his dick falls off) damned hacker. 
I remember now why I didn’t like him on the Provigil
He doesn’t shut up! I haven’t had a second of peace since they put him back on the stuff.
And I can’t stuff a rag in his mouth, that is not acceptable behavior. Can’t use duct tape, again not acceptable behavior.
I put my earplugs in and he talks louder.
Beg him to shut up and he gets whiny.
I can’t send him back to the hospital, he isn’t sick.
Now to get him to actually follow doctor’s orders…
Me while aiming Minion fart blaster at The Curmudgeon: “Ve Haff ways uff making you drink the thickened stuff.”
Him: “Yuck, noooooo!”
Fart blaster farts a juicy, extended fart.
Him: Laughs.
Me: “Just try it. Please?” This is going to hell on wheels. Rolls eyes.
He’ll be home soon
The Curmudgeon’s health was much improved when I went to see him yesterday.His doctor was quite thrilled with how his chest sounds.
I met the two gals who are trying to find a solution to his choking on food and drink problems–probably why the pneumonia started in the first place.
Now they are telling me they think the drooping of his face that night was from his high fever and infection and not a mini stroke.
It looks as though they will send him home today. However, that won’t be until late afternoon it seems since he’s scheduled for a test at one.
In the meantime I have to run my car to the dealer in the MORNING (I don’t do mornings!) and then get to the hospital for him.
So much for G and I running a couple of errands.
There’s nothing like friends
You can always tell who your truest friends are when you are in need of help. They are the ones who show up and say, “What can we do?”
I had some true friends give me a hand today to help make life a bit easier for The Curmudgeon when he gets home from the hospital.
It can’t get better than that.
No wonder it was a bad day
Phoned 911 around 2 a.m. and had them come get The Curmudgeon. His speech ranged from crazy to incoherent. His face sagged on one side. His legs were stiff and he couldn’t move when asked to do so. He put me into panic mode.
Around nine in the morning the hospital phoned me. The Curmudgeon had run a temperature of 105 degrees. They say pneumonia and a possible mini stroke.
I’ve had maybe three hours of sleep since yesterday. Too wired to do anything but doze on the couch with Lucy for short periods.
A friend and her husband are making a two-hour drive to get here later just to help me rearrange furniture so The Curmudgeon will have it easier and when EMS comes I don’t have to move a couch and a coffee table.
Now that’s a friend.
I love you Paula (the shark.)
And the hits just keep on coming
I am so stressed out I can’t even keep my bill paying straight. I’m not sleeping well and watching him go down, down, down the well of secondary progressive MS is going to kill me before it does him.
I am a wreck from every little bump or thump I hear thinking he’s fallen again. I’ve run up and down stairs so many times I think my legs are going to fall off the next trip.
I’m not a nurse. I am so sick of emptying pee bottles, I did not choose to do this but this is all I do lately. I wait on him and run myself ragged.
Is there help out there? Not for us it seems.
This is not life. This is a slow death.
Another crappy MS heavy day
So the day began with The Curmudgeon having a great deal of difficulty walking. At one point I had to help lift him into his bed. Yep, there went my back again.
Then I had to leave him alone to go to my doctor appointment. Yes, I worry but I can’t cancel last-minute. I have no choice but to leave him alone.
I came home loaded with a new antibiotic and a sore arm from a shot. They did a quick throat culture to rule out strep. Strep is deadly for The Curmudgeon it makes his MS do an intense flare up. I don’t have strep. Whew.
I think it is time for a little….
Doggonedmysteries 