Blog Archives

MS sucks big time

I’ve said it many times and many ways before. Multiple Sclerosis sucks and secondary progressive MS sucks even more.

Had The Curmudgeon been a normal healthy person he probably would not have lost his balance on the back porch steps while dodging a carpenter bee.

He is still in the hospital. He still has a chest tube in and he is improving a little at a time.

Today we found him more alert and his color was a lot better.

Tomorrow he’ll have to be happy with a phone call instead of a visit, I really need to get some stuff done here at home.

If I had a couple of willing slaves …er volunteers to come and help move some furniture and electronics around while he’s not here. I’d love to surprise him by having his chair and TV moved to where he’ll be happier.

HPIM4051

Another day shot to hell

We did have a couple of good thunder boomers come crashing through. Following that, we had some wind gusts and pouring rain. And…that was it. Yay. The tornado watch was a real fizzle out.

After living quite a few years in tornado alley, I was not looking forward to a night in our basement. Our basement is nasty.

Have to dash off for a blood test this noon. Going to take G along so we can stop for a late lunch afterwards.

I am still looking for volunteers for any number of projects around here. Yeah, I know…good luck with that. Yard crashers? House crashers? Anyone?

Crickets chirping…

Silence….

Hello? *Echoes Hello…hello…*

**Sigh**

Today’s shirt

I run

Sigh

Run run run away…

As many a caregiver give will tell you, or not (because they won’t admit it to themselves), there are days where you truly want to pack it in and just leave. Believe me, If I’d had the money to be able to do it, I would’ve been gone yesterday.

It was a crazy “I am beyond overwhelmed day” for me. Even the small stuff had me ready to explode. Maybe it stems from being closed in with The Curmudgeon for well over a week.

Yes, I need to get out of here even if it is only for an hour or two.

the scream

Up tempo

I dance with life every day
two steps forward
three steps back
one of these days I might lead
two steps back
three steps forward
maybe a change of tempo
maybe an extra beat
one day I might miss a step
trip over my own two feet
might even forget the dance
and when I do
do I forget you?

Margaret Hauser 4/8/2015

redheads tWore this yesterday

Born 100 years ago…

Gone now for twenty years. Pop, I miss you still.

Dad2Dad3DadPeg's baptism with Mom and Dad 1954

Slight improvement…he’s not sure.

Slight improvement yesterday. Yay! Even a slight improvement is better than none. I wasn’t awakened by an emergency call from The Curmudgeon. Instead, he’d taken care of the dogs and himself. Then he did his shot and it shot him to hell so he’s not sure it is helping.

I got some much-needed sleep and no adrenalin jolts to wake me.

Yesterday’s shirt.

love him or shoot him

Day two of the steroid treatment

Started out with getting him up off the kitchen floor. Then later off the bathroom floor and into bed. Thank goodness for my neighbor’s youngest son who helped me get The Curmudgeon up and into bed.

Seriously think we should get a hospital bed for him so he can be more comfortable when he has bad days and has to stay upstairs in bed. Don’t have any idea how to even begin that process.

A lottery win would buy us a house he could navigate easier that’s for sure. This house is NOT easy on him.

You all have a good one. I’m going to go curl up on the couch with Lucy and a good book on my Kindle. I need some quiet time.

HPIM4526

Too long a day…

He woke me yesterday morning with an adrenalin jolt–he’d fallen. So, not much sleep, adrenalin jumpy, stressed out, and not so ready to take him for his MRI appointment, off we went at 1p.m.

At the hospital, him falling on the way in, me grabbing a wheelchair to get him up an inside the building, having to maneuver it (with his walker in tow) to get him to his appointment. Then running the walker out to the car, back in to sit and wait for him… we finally made it home around 3.

I got him in the house and then G and I hit the farmers market.

We sampled some wine at Clover Hill Vineyards & Winery​, I bought some Niagra–scrumptious for a sweet wine which I was in the mood for probably because of stress.

We did our usual twice around the market and bought other things too like smoked sausage and pimento cheese spread…

Back home we drank some spiced apple wine from Clover Hill and munched some crackers with the pimento cheese spread.

Before I went to bed, I’d mixed up a meatloaf and put it in a pan in the fridge, so glad I did. All I had to do for our dinner was toss the pan in the oven for an hour. A little salad, some mashed potatoes and veggies VOILA! Dinner.

You’ll find me curled up on the couch with Lucy…

I hope somebody out there had a good one.

coffee gimme

Crazy weather.

So I went to take the dogs out after dinner last night and fist sized snowflakes were coming down, fast.

Gavin took it all in stride, snow doesn’t bother him. Lucy, however, did a complete double take and then gave me a look of total disbelief. “WTF Mom? I NEED MY HAT AND COAT!”

HPIM4404

What DVDs have you watched lately?

Catching up on watching our DVDs. We got behind on them and had two tall stacks to go through. We’re down to a short stack now.

Last night we watched Reds 2. Loved it as much as Reds. What can I say, it’s good to see a movie that has people over the age of 40 as the heroes of the story. Sure, there is plenty of gunfire and violence, but it is more for color.

Most movies suggest that once you are past the hotty stage, your life is over. Not true my darlings, not true.

I never Know what movie we’re going to watch. The Curmudgeon is in charge of picking them and setting up the DVD so we can watch a movie through dinner.

HPIM4051

Run in the candy aisle jungle

All that Easter candy will be the death of my diet.

G and I went to Target today to pick up a few items. She’s been off chocolate candy for Lent. So naturally she dragged me into the Easter candy aisles so she could load up for the day she can scarf a ton of chocolate down.

Chocolate, dark chocolate my biggest most irresistible nemesis. Oh, I truly did not need a candy heavy holiday come anyway near me.

Yes, I bought bags of dark chocolate candies. I am weak.

HappyEas

Coffee break

Yeah, I can’t think of anything to write tonight so I’m going to take a runner and leave you all hanging.

Wearing this shirt. 😀

I run

coffee gimme