Blog Archives

I wish he could have a good day every day

Yesterday, The Curmudgeon had what I would call a good day.

He got around pretty well and didn’t fall once.

He had a good nap and seemed in better spirits than he has been.

However, last night, he did mention that he thinks he needs to have his antidepressants changed as the old ones seem to not be working.

It saddened me to hear that.

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What are you thankful for?

I’m thankful I made it through the day.

I’m thankful The Curmudgeon had a decent day.

I’m thankful he’s gone to bed and the dogs are asleep.

I’m thankful to have a little time to myself.

sip coffee and pet my dog

Go…go…go

Had another day of non-stop running around.

Pups had me up early. By the time I got them fed and out twice it was time for me to shower and head out to the doctor’s office.

Doctor put me on another antibiotic in hopes of killing this tickle in my chest. It’s still hanging in there.

Then I had to make a stop at the grocery store. Why do people wait until the last-minute to buy things for a holiday meal? I had to brave the crowd just to get dog food and few things on my list.

We don’t do holidays. It’s just the two of us and who needs to fuss?

From now until after Christmas, I avoid stores as much as possible only buying things I absolutely need and in as few trips as needed.

When I finally got home, the pharmacy called to let us know his medications were ready. I’ll go get them tomorrow. I am not driving in the all idiot traffic again.

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Strange sort of day

So glad I planned on spaghetti for dinner before I took The Curmudgeon for his eye doctor appointment.

His appointment took forever, he’s now showing *baby cataracts* and had some changes in his eyes.

I’m hoping he will see better after he gets his new glasses and his complaints will lessen.

Next week I go for my check up and new glasses.

I iz sexy gurl

Through the looking-glass darkly

There are days I feel like Alice, staring in the looking-glass, climbing up on the mantle to try to see around the corner.

I push my face against the glass, hoping that I fall through to the other side, and things are different.

I pray for an escape. Some way to find a bit of joy again.

I miss laughing.

I miss having joy bubble up inside me.

I want a looking-glass to fall through.

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Butt dragging day

Woke before my alarm again thanks to Gavin. Couldn’t get back to sleep thanks to both him and Lucy.

Therefore the entire rest of the day, even with tons of coffee, I spent with my eyes drooping and my butt dragging.

A nap you say?

Nay, no nap for me.

Soon as I settled in for one The Curmudgeon came wandering down from his.

Sigh.

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Will the old dog ever sleep in?

Seems that no matter how late/early I take the Gavin out, he still wakes me an hour or so before my alarm. So your guess is as good as mine.

I’m actually glad that the old boy is still around to wake me up so don’t get me wrong. It’s just that, every day, I want that hour back.

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This isn’t the Wonderland I’d like to be in

It’s difficult to watch this man fall apart more each day.

We’ve been married for 43 years and together for two years before that.

We had our ups and downs but this has been a very long down since his diagnosis in 1989. It’s difficult when you no longer have any ups.

The fall down this rabbit hole is far from pleasant and when you hit the bottom, you realize that yes, things can get worse.

There is no bouncing back. This is not relapsing remitting MS. This is that long, slow fall down the rabbit hole into a Wonderland that has gone bad.

I hug my bull terrier

 

 

Back on the Ampyra after only two days…

The Curmudgeon had such a bad day that I almost canceled my hair appointment but he bade me go ahead.

He put in a call to his neurologist about his Ampyra. He could barely walk and that frightens him. He’d rather have poorly functioning kidneys than not be able to walk.

They called back early in the evening and told him he could go back on Ampyra.

One dose into his system and he’s feeling better.

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Welcome to my hell

So now his kidneys aren’t functioning right.

They had him stop taking his Ampyra which is the pill that makes it so he can walk. They also had him stop taking his Celebrex that stops the severe pain in his back from arthritis in there.

Until the Nephrologist sees him IN JANUARY.

Imagine his hell–all that pain and not being able to walk again. For at least 2 1/2 months! Maybe longer if they take him off the medications permanently.

And then there’s my hell…I don’t have any help so when he can’t walk, I have to move him and I am not a young person without health problems.

When he’s moaning and groaning in pain, I can’t help him.

I can’t leave him alone and yet I still have grocery shopping to do and all the rest of the upkeep of the house. Can you say beyond overwhelmed?

It’s no wonder to me why there is such a high divorce rate in patients with MS.

and-we-have-a-runner

Not real thrilled with people

If you haven’t noticed…I have not been on my Facebook page a lot.

I intend to continue this practice.

I have enough on my plate, I do not have to deal with people and situations that I don’t like.

There are many of you out there that I absolutely adore.

During this past year I remembered that I don’t like a lot of people for various reasons.

At my age, I know what and who I like rather quickly.

fuckers-dont-even-like-yourselves

 

LOL! Me? Spammed by a designer handbag outlet.

Anyone who knows me knows that just the idea of me carrying a designer handbag is ridiculous.

I buy a leather purse when my last one wears out.

Yes, I said wears out.

I do not change purses with the season.

I do not buy several colors.

I buy one I like and I stick with it until it falls apart.

A designer’s name on a purse doesn’t make it last longer or look better. It only makes it cost more and I find it rather silly to spend a fortune on a purse.

My reasonably priced leather purse…I have carried it since 2013, will carry it until it falls apart, and I have another one just like it on order. Why? Because I like it and it wears like iron. LOL

my-purse