Blog Archives
The kindness of strangers
Posted by doggonedmysteries
We only met with Mike once.
For two years I’ve been trying to get our porch fixed so The Curmudgeon can safely go up and down the steps. No one would do the job. “Too small a job, lady. Not worth my time.” Everyone I called responded in this way.
Not Mike, he willingly gave us an off the cuff estimate to be followed by a more accurate one after he talked to his cement guy. He is very concerned about how unsafe the steps are, especially for one whose mobility is so limited.
Last night he called to tell me, because he has a few LEOs in his family, he was attempting to get the FOP involved and see if he could have them pay the repair costs because he knows the price we’ll have to pay will stretch us thin.
Now, I don’t know if he’ll be successful, but the mere thought that he went so far as to try this broke me down into tears.
On another note. I talked to The Curmudgeon’s doctor and from the way she’s talking, he will be in the hospital at least over the weekend, most likely longer.
Posted in MS related
Tags: Author, Caregiver, Disability, Doggoned, Home, Life, Love, Multiple Sclerosis, Writer
The Curmudgeon is back in the hospital
Posted by doggonedmysteries
I went to see him and he’s just a couple of doors down from where he was last time. Dropped off his MS drugs, specialty drugs they do not carry at the hospital pharmacy, he can’t stop taking them for the time he’s there, so I have to supply them.
His first day there and he was not as out of it as he was for several days the last time he went in.
I have no idea how long they will keep him. I hope long enough to resolve some of the problems they sent him home with last time.
Posted in MS related
Tags: Author, Caregiver, Disability, Doggoned, Home, Life, Love, Multiple Sclerosis, Writer
MS so effing sucks
Posted by doggonedmysteries
The Curmudgeon did well for the past week or two. Then yesterday it all fell apart.
I had to get help to get him off the floor and into bed. He’d pissed his bed and clothes. So I had to strip him of his wet clothes, dress him, and wash all the bedding and his clothes. I did this after I hurt my back again trying to get him up.
He’s been out of it all freaking day.
Therefore, I had to deal with the guy that came to clean the furnace, Something he usually does, even if it is just sitting on the stairs while the guy works.
The Curmudgeon doesn’t want me here. He wants a mother, I am not his mother, I am no one’s mother. I do not have a nurturing spirit, that died with the 8th miscarriage.
All the wine or martinis in the world aren’t enough to make dealing with this, in any way, easy.
“The lifetime divorce rate is roughly 50 percent; for chronically ill people, the rate is 75 percent.” Are where the statistics stand today.
Am I surprised? No, not one bit. I think about it EVERY day.
However, because I quit jobs so many times to take care of my sister when she had cancer, and because now I’m over 60 years of age and out of work for so long, I am unemployable.
In other words, no one wants to hire me because I’m too fucking old.
I have no way to leave and no place to go. I feel as though I have a gun to my head making me stay. I am beyond exhausted both physically and mentally.
I have no joy.
Posted in MS related
Tags: Author, Caregiver, Disability, Doggoned, Home, Life, Love, Multiple Sclerosis, Writer
Finally! Porch repairs look imminent.
Posted by doggonedmysteries
We found someone to fix the porch!
For a couple of years we’ve been looking for someone to fix our porch, contractors came and went, each telling us the job was too small for them to do.
We sort of gave up and hoped we’d be able to get a friend to patch it.
However, when the bottom step fell off in October we renewed the search with vigor. Praying the city wouldn’t see it and fine us.
Every contractor we called did not call us back.
Once again, I began a search, and again, no one would consider the job.
We thought we had someone through a friend of a friend, but we never heard back from that person. Then someone else found what looked like a promising lead, sent it to me, and that contractor also did not call back.
In the wee hours of last night I went on a hunt vowing to do it all night if necessary.
A search of cement porch repairs found “Porch.” Once on Porch, I punched in my project, zip code, and other information. Today we had a call and a warm body show up at the house, and by 6 p.m. had an estimate in hand.
Yes, he’s hired.
All but the back pieces and that piece on the right on the bottom step are gone now.
Posted in Misc
Tags: Author, Caregiver, Disability, Doggoned, Home, Life, Love, Multiple Sclerosis, Writer
The Hello Crow
Posted by doggonedmysteries
The cemetery next door is a winter home for a rather large murder of crows. Because of this we have to walk the yard before taking the dogs out to find and clear up bones and other garbage that the crows and squirrels drop in our yard. Both creatures scavenge from open trash cans around the area. (Too bad people can’t keep the cans covered but instead risk people’s dog’s health…if I miss just one bone…)
Yesterday while out with Gavin, I had the pleasure of meeting our old friend Hello Crow. He’s part of the murder and has been around for many years. We know him by his distinctive ‘Hello’ which makes us believe a woman raised him. His ‘hello’ is a fairly high pitch and quite clearly a hello.
He sat high up in the tulip poplar and said hello to us many time. I, of course, responded in kind.
I’m sure the people passing by thought I was completely strange, but I don’t care.
Posted in Misc
Tags: Author, Caregiver, Disability, Doggoned, Home, Life, Love, Multiple Sclerosis, Writer
Global warming anyone?
Posted by doggonedmysteries
The sixteenth of January we hit 50 degrees in Pennsylvania.
Yes, we’re getting colder weather over the next few days, but the warm days we’ve had are way above normal for our area.
I promise, I am not complaining. I hate winter.
However, no matter what the vacuous ‘there is no such thing’ people say, it is a real thing and we need to work towards a solution.
So far this year we haven’t had a chance to do this…and I am fine with that.
Posted in Weather related
Tags: Author, Caregiver, Disability, Doggoned, Home, Life, Love, Multiple Sclerosis, Writer
Lucy speaks
Posted by doggonedmysteries
The Momma went out to lunch wiff Auntie G. They went to a place out back and groceries shopping and pet store shopping.
Gavin and I has lots of cookies and big bag of food now, we won’t starve!
She also gaved us some steak from out back, told the Daddy they cooked it wrong and she did not want to complain but couldn’t eat it that done and tuff.
They gived her a new steak cooked perfectly and she brought us the one they cooked wrong.
I didn’t smell nothing wrong wiff it. I thoughted it was berry good.
Yes, I did too share it with the Gavin brother.
Posted in Misc
Tags: Author, Caregiver, Disability, Doggoned, Home, Life, Love, Multiple Sclerosis, Writer
The Curmudgeon’s birthday
Posted by doggonedmysteries
So it was The Curmudgeon’s birthday today. He’s now 63.
G brought him cake.
I got my revenge for the Christmas present vacuum cleaner he gave me many years ago by presenting him with a new rollator the other day.
Posted in Misc
Tags: Author, Caregiver, Disability, Doggoned, Home, Life, Love, Multiple Sclerosis, Writer
Dang it no winning ticket again
Posted by doggonedmysteries
So G and I didn’t hit the lottery.
Which means still no escape from this life as a caregiver in a falling down around our ears home.
No beach home…. yet.
No spa like care facility for The Curmudgeon.
No financing more research into a cure for MS.
Posted in Misc
Tags: Author, Caregiver, Disability, Doggoned, Home, Life, Love, Multiple Sclerosis, Writer
I need a daily reminder to take my pills
Posted by doggonedmysteries
So I have been ill the last few days. Dealing with an “if I hadn’t forgotten to take my medications three days in a row” problem.
Yeah, I get sidetracked by The Curmudgeon and dogs so often some days that I really do forget to take my daytime medications.
Doing much better after two days of TAKING ALL my medications.
Posted in Misc
Tags: Author, Caregiver, Disability, Doggoned, Home, Life, Love, Multiple Sclerosis, Writer
One day where no one is ill and no one dies
Posted by doggonedmysteries
Every day on Facebook there are many stories of someone’s ailment or their pet’s ailment or so much death.
I wake each day, full of dread, at just having to face my husband’s Multiple Sclerosis.
I find I am online for less and less time each day.
I feel myself withdrawing more and more into an insular life.
This is not a good thing.
I can’t help it.
I am tired of everything.
Posted in Misc
Tags: Author, Caregiver, Disability, Doggoned, Home, Life, Love, Multiple Sclerosis, Writer
He’s getting snazzy now
Posted by doggonedmysteries
So The Curmudgeon’s new rollator/transfer chair arrived today. Gee, that was quick! Thank you Overstock.com!
It is simple and quick to convert it from rollator to transfer chair.
When in transfer chair form, I wish it rolled over floor transition strips better.
Now all I need to do is get his Mom’s old, heavy, clumsy rollator out of here, we don’t have space for three.
Posted in MS related
Tags: Author, Caregiver, Disability, Doggoned, Home, Life, Love, Multiple Sclerosis, Writer













