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Day two of the steroid treatment
Started out with getting him up off the kitchen floor. Then later off the bathroom floor and into bed. Thank goodness for my neighbor’s youngest son who helped me get The Curmudgeon up and into bed.
Seriously think we should get a hospital bed for him so he can be more comfortable when he has bad days and has to stay upstairs in bed. Don’t have any idea how to even begin that process.
A lottery win would buy us a house he could navigate easier that’s for sure. This house is NOT easy on him.
You all have a good one. I’m going to go curl up on the couch with Lucy and a good book on my Kindle. I need some quiet time.
I don’t want to know how much the medication costs, please don’t tell me.
I should’ve known that when the phone rang early in the morning and the caller ID showed his neurologist’s name that it wasn’t going to be a good day.
His neurologist asked him to come in any time before 4. We went in. His MRI showed worsening plaques on his brain. She told him, “it wasn’t pretty.”
Now he has 5 injections…well, 4 to go, at one a day, since he did one already in the office with a nurse and a PA watching to make sure he hadn’t forgotten how to do an injection. He’s on 5 days of Acthar, a steroid treatment. That’s one vial at over $1,000.00. (Yep, my jaw hit the floor. So glad they ‘work these things out’)
We’d sure like to hear some good news for a change but it doesn’t look like that’s going to happen any time soon. It’s as likely as a lottery win, a repaired porch, Yard Crashers, or surprise house painters and cleaners showing up at our front door. As likely as any sort of help showing up for that matter.
Stress level: High
I have no fucks left to give.
Too long a day…
He woke me yesterday morning with an adrenalin jolt–he’d fallen. So, not much sleep, adrenalin jumpy, stressed out, and not so ready to take him for his MRI appointment, off we went at 1p.m.
At the hospital, him falling on the way in, me grabbing a wheelchair to get him up an inside the building, having to maneuver it (with his walker in tow) to get him to his appointment. Then running the walker out to the car, back in to sit and wait for him… we finally made it home around 3.
I got him in the house and then G and I hit the farmers market.
We sampled some wine at Clover Hill Vineyards & Winery, I bought some Niagra–scrumptious for a sweet wine which I was in the mood for probably because of stress.
We did our usual twice around the market and bought other things too like smoked sausage and pimento cheese spread…
Back home we drank some spiced apple wine from Clover Hill and munched some crackers with the pimento cheese spread.
Before I went to bed, I’d mixed up a meatloaf and put it in a pan in the fridge, so glad I did. All I had to do for our dinner was toss the pan in the oven for an hour. A little salad, some mashed potatoes and veggies VOILA! Dinner.
You’ll find me curled up on the couch with Lucy…
I hope somebody out there had a good one.
MRI and then what?
So later today I take The Curmudgeon for another MRI. I hate taking him for them because I am stuck sitting in a hospital waiting area with a bunch of sick people.
Even though I don’t touch the arm rests on the chairs or any of the magazines (I bring my Kindle) and I wash my hands as soon as I get home. I usually come down with some sort of creeping crud.
I think they should supply healthy people with masks and gloves so we don’t catch whatever is floating around.
Color me green and unhappy about being there.
Crazy weather.
So I went to take the dogs out after dinner last night and fist sized snowflakes were coming down, fast.
Gavin took it all in stride, snow doesn’t bother him. Lucy, however, did a complete double take and then gave me a look of total disbelief. “WTF Mom? I NEED MY HAT AND COAT!”
Really? More snow?
I can’t believe it, we have snow in the week’s forecast. When I took the dogs out at 4 a.m. yesterday it was snowing.
*Packing bags*
Just put the candy down and back away …
Dang, I really need to lay off on the candy. It’s a good thing this last bag I opened is milk chocolate instead of dark or any form of M&M. That will slow me down a lot since I am not as fond of milk chocolate.
I seriously need to find some will power. Too bad they can’t bottle it.
I could also use a personal trainer to kick my ass on a daily basis. Any volunteers? Yeah, I thought not.
This is going to be a rough Spring and Summer since I have to get my butt moving and take off the excess weight once and for all. The Curmudgeon’s poor health makes it tough to get away from the house to do things, much less motivate me to exercise.
Ha! I iz not de onwy one who beez fluffy!
Lucy sleeping
I hope they can put him back on the Tecfidera soon
The last two days The Curmudgeon has had a bad time of it. Which means he’s been sitting in his chair more and I’ve been getting less sleep.
At least yesterday, unlike the day before, he didn’t wake me with a panic call that jolted me out of bed in an adrenalin rush that later made me sluggish and gave me a hell of a headache.
His walking is crap again. He’s doing more falling and is being a stubborn sod about using his walker. He won’t unless he’s already fallen down. (Sigh)
He had a blood test yesterday, keep your fingers crossed that his lymphocyte numbers went down.
You all have a good one.
Lucy is waiting for some warm, sunny days to get here so she can go for walks in the park.
Da Momma iz cwazy
I fink Da Momma habs losted her mind. She boughted me deeze Doggles.
Duz you finks she habs losted her mind too?
Eben Daddy finks she’s gone off ob da deepz end.
She willz be back whenz we untiez her.
New picture
It’s time to change my *Welcome to my blog* picture.
^There’s this one A^
^Or this one B^
^Or this one C^
Decisions, decisions…geeeeez.
What DVDs have you watched lately?
Catching up on watching our DVDs. We got behind on them and had two tall stacks to go through. We’re down to a short stack now.
Last night we watched Reds 2. Loved it as much as Reds. What can I say, it’s good to see a movie that has people over the age of 40 as the heroes of the story. Sure, there is plenty of gunfire and violence, but it is more for color.
Most movies suggest that once you are past the hotty stage, your life is over. Not true my darlings, not true.
I never Know what movie we’re going to watch. The Curmudgeon is in charge of picking them and setting up the DVD so we can watch a movie through dinner.
Run in the candy aisle jungle
All that Easter candy will be the death of my diet.
G and I went to Target today to pick up a few items. She’s been off chocolate candy for Lent. So naturally she dragged me into the Easter candy aisles so she could load up for the day she can scarf a ton of chocolate down.
Chocolate, dark chocolate my biggest most irresistible nemesis. Oh, I truly did not need a candy heavy holiday come anyway near me.
Yes, I bought bags of dark chocolate candies. I am weak.
Doggonedmysteries 