I should’ve known that when the phone rang early in the morning and the caller ID showed his neurologist’s name that it wasn’t going to be a good day.

His neurologist asked him to come in any time before 4. We went in. His MRI showed worsening plaques on his brain. She told him, “it wasn’t pretty.”

Now he has 5 injections…well, 4 to go, at one a day, since he did one already in the office with a nurse and a PA watching to make sure he hadn’t forgotten how to do an injection. He’s on 5 days of Acthar, a steroid treatment. That’s one vial at over $1,000.00. (Yep, my jaw hit the floor. So glad they ‘work these things out’)

We’d sure like to hear some good news for a change but it doesn’t look like that’s going to happen any time soon. It’s as likely as a lottery win, a repaired porch, Yard Crashers, or surprise house painters and cleaners showing up at our front door. As likely as any sort of help showing up for that matter.

Stress level: High

I have no fucks left to give.