Blog Archives
Waiting for MRI results again
Posted by doggonedmysteries
We had to go to the hospital for The Curmudgeon to get an MRI of his thoracic spine. So glad I took my Kindle along since they took him in fast and I was left sitting in the waiting room. With the Kindle the time passed quickly.
The Neurologist told The Curmudgeon he can’t drive until she sees the results of his latest MRI. He’s not thrilled. If she takes his driving license away we’ll sell the truck. We can use the bucks and we can save all that insurance money that we shell out for it.
Posted in MS related
Tags: Author, Caregiver, Disability, Doggoned, Multiple Sclerosis, Quality of life, Treatment of multiple sclerosis, Walking, Writer
Oh, for Pete’s sake, WordPress changed things again!
Posted by doggonedmysteries
I am not happy with the new format WordPress threw at us tonight. First of all, I hate surprises. Secondly, the new format makes tagging the post a real PITA.
Hey, there was nothing wrong with the way it was!
On another note, the world is a bit darker now that another great star has gone. Who will ever forget the famous line, “You do know how to whistle, don’t you? You just pucker up and blow.” The fabulous Lauren Bacall, one of the brightest stars, has left us. My deepest sympathies to her family.
Posted in Misc
Tags: Author, Caregiver, Disability, Doggoned, Life, Love, Multiple Sclerosis, Quality of life, Writer
Decisions, decisions…The Curmudgeon must decide.
Posted by doggonedmysteries
Spent our afternoon sitting in the neurologist’s office. It looks as though they are finally going to change The Curmudgeon from Avonex to something else. The Avonex has prevented any further damage but his body’s reaction to it is getting worse as time goes on.
He will give himself his injection on a Monday night. Then for the next four days he’s in rotten shape, having trouble walking, and in general his quality of life sucks big time. This wasn’t working for us.
He has three choices, one of which is a pill taken twice a day. “Tecfidera™ is an oral therapy contained in capsules taken two times per
day. Tecfidera, formerly known as BG-12, is dimethyl fumarate, a
formulation that was developed specifically for use by people with multiple sclerosis.” He is hoping this is what he gets. Only problem is, the main side effect which lasts for about six months is the runs. Oh, fun…NOT. However, if it eventually improves his quality of life he’s willing to suffer through it.
Another choice is Tysabri it is given once every four weeks by intravenous infusion. And the third choice, one I doubt he’ll ever use, is Copaxone, it has a higher chance of side effects, is injected every day, and daily injections are something he refuses to do. Hell, he hates a once a week injection.
You all have a good one.
Posted in MS related
Tags: Author, Caregiver, Disability, Doggoned, Family, Love, Multiple Sclerosis, Quality of life, Writer




