Ampyra was FDA approved back in January.  Today the neurologist’s physician assistant talked to DH about putting him on Ampyra.  Funny, when I mentioned to his neurologist the last time I was along, he didn’t seem to know WTF I was talking about then.  To me this means I’m probably one-step ahead of him.

     DH is the love of my life, my soul mate.  Do you think I don’t try to keep on top of everything out there for MS?  I do daily research.  I read articles on MS treatments from all over the world.  I keep track of the progress of clinical trials and any new drugs that show promise. 

     They list 14 of ‘the most common side effects’ of Ampyra.  Yes, a few of them are scary but then his secondary progressive MS is overwhelmingly terrifying.  To DH it’s a case of choosing between struggling to walk and improved walking.  He wants to walk.

     He isn’t taking it yet.  They are checking to see if his drug plan covers it or not before prescribing it.  Knowing his drug plan, he’ll probably have to fight for it.