Let’s see what happens.
A while back I posted a bit of a rude comment on the National MS society’s FB page.
I was actually surprised when they asked if they could contact me in person. I said they could.
I got a call today. So far it sounds as though they will try to help. We’ll see. We have yet to have any sort of help from any MS group. Once they find out our income (just above what they consider ‘in need’) and that he is secondary progressive and not relapsing remitting, they and any help offered tends to disappear.
It is still my opinion that all they do is take in money and do not truly assist anyone. I hope they prove me wrong.
The only thing The Curmudgeon ever got from an MS group was an ice vest and that was because of his neurologist more than anyone. I’m not looking for a free ride, but we do need some help because I cannot do it all!
After spending so much time clearing out his mother’s house, having the heart attack, and feeling so darned tired all the time, I fell far enough behind in my house cleaning that it seems overwhelming. If only the house were cleaned to a level where I could keep it up without feeling so completely overwhelmed, I’d feel very less stressed each day.
The fact that I wake up stressed on a daily basis, which in turn stresses him out, has become a vicious circle. I no longer smoke because of the heart attack but it doesn’t mean that I’m not tempted to light one every single day.
He can’t do much around here, he can’t even take the dogs for a stroll like he used to, with his scooter out of commission it’s a no go. His scooter came out of our pocket in total and when it stopped working the manufacturer never responded on repairing it. (Basically we were told screw you.) Now it sits in the yard collecting rust and weeds. I can’t fix it and he most certainly can’t.
Anyway, it’s another day of one foot in front of the other, trudge forward, and hope tomorrow is better.
You all have a good one!
Posted on May 2, 2013, in My blog and tagged Author, Caregiver, Disability, Doggoned, Family, Life, Love, Multiple Sclerosis, Writer. Bookmark the permalink. 2 Comments.
Doggonedmysteries 
Bless you. That sounds TOUGH. I am not the caregiver in my house. I am the MS’er. I watch as my husband works, pays insurance, carries me to and fro to be scanned to the moon by machines, gives me injections . . . the role of a caregiver is not an easy one. I think it is awesome that you are advocating for your husband. You sound like an amazing wife! I pray that you find the help you need. No one should be forgotten. We also fall outside the “need’ category. I am RRMS but I do understand how costly things get when you are paying insurance, labs, medicines, time off work . . . it is A LOT. Hope tomorrow is a better one for you.
I hope this time there will be help considering how deserving the request is.